Experiências da equipe de enfermagem e o processo de finitude de pacientes crônicos pediátricos

Abstract

There are studies that points to the need of deepen in questions related to chronic diseases in child and the finitude process, as well as for the reflections that this process triggers evolving the nursing professionals and the caring with child in this phase of care.Then sought, know the experiences of nursing professionals in front of the finitude process in chronic pediatric patients in the hospital context. Descritive study, with qualitative approach, it was made in a unit pediatric hospitalization in a reference public hospital, in Maceió/AL, in the period of april and may 2022, with nursing professionals, through a half structured interview and content analysis, approved by the protocol 5.398.978. 15 professionals participated and emerged thematic categories: The relationship of professionals with chronic child and family in hospital; Perception of nursing care to the chronic child in finitude process; Feelings of nursing professionals towards the chronic child finitude; Coping strategies of nursing professionals towards the chronic child during the finitude process; The loss and mourning nursing professionals experience in the finitude process of finitude of chronic child. It was found by the speeches the bonding by the professionals related to the time of care and readmissions e how this affects the care between the finitude process. It also points to the need of deepening related to the palliative care when dismissed to the child and the share with family. The process awakens impotence, sadness and suffering, and some moments “ the professionals detachment”, supported by beliefs, spirituality, and faith, as a way of protection. These are strategies used to support in front of child death and moments with family, meantime, not always is possible don’t feel affected in the work process or social life. The professionals also establish relationships of trust, empathy and dialogue. The professionals team experiences relates this reactions/attitudes to bonding and also signaled to the need of emotional suport to the team and discussions about loss/separation, death and mourning, as well as palliative care and chronic diseases in child.