Experiência de vida de uma mãe e seu filho com transtorno do espectro autista

Abstract

This study sought to discuss the life experience of a mother through her narratives with children with Autism Spectrum Disorder, as a relation to their development and constitution as a social being. It is a qualitative study, the narrative analysis of a story told chronologically, with a focus on how the various elements of the story are ordered. The study was conducted in 2017 with a 51-year-old mother of a person diagnosed with Autistic Spectrum Disorder under follow-up at a CAPS in the municipality of Maceió-Alagoas. The data were organized under the axes: 1) Bob's life experience: the mother's narratives, from five topics extracted from the narratives, and 2) the significant elements of Bob's life experience, with discussion about: a) Changes in development, b) experiences in school and other institutions, c) positive relationship with CAPS, d) family relationship, e) the challenges of Autism Spectrum Disorder. From the narratives, they showed that the mother is the greatest ally for the treatment and development of a person with Autism Spectrum Disorder because she intuitively identifies that something is not working well in the child, it has a relation with their life experience in relation to the Consequences of late diagnosis, family disruption and fragility of the school system regarding educational inclusion.